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Gastritis Mystery Solved

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  • dany1982
    replied
    Hope, are you better? What did you find it helped?

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  • terryj
    replied
    LSAT, it's not like I haven't changed Dr's several times actually. What a procedure to get get a diagnosis. Must admit part of it is my fault. I also had Graves disease and ended up have Thyroid removed due to papillary carcinoma so I attributed part of this pain and problems to the finally discovered Thryoid Disease. (speeding while ill with Graves disease has many many symptoms) When you loose your thyroid everything starts to fall apart.
    But for the last three years it's been a slow process getting this far. Hopefully Gastro Dr. will do something. Thanks for replying

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  • LSAT
    replied
    Terry....After 10 years of this I'm surprised that you have had no tests. (I think you should change doctors). You need an endoscopy and a 24 hour PH test to see if your discomfort is really from acid.

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  • terryj
    replied
    question for you

    You describe this as heartburn does it go up into your chest or across under your breasts and in the center? I have had this "pressure" type feeling off and on for the better part of 10 + years. The Dr. didn't run any tests and told me it was gerds. I have been off and on aciphex and protonix since that point and recently, while on aciphex, it started coming back and I was finally tested,Upper GI. I was told I have Gastritis, esophegitis, gerds and a sliding esophgeal hernia (hiatal hernia). I am going to a gastro Dr. whenever I get the referral hopefully soon. The feeling I have, like I said is sort of a tightness around the front of my chest and the feeling that someone has a fist in my stomach. I suppose it could be heartburn although the heartburn I feel when not on med's is much stronger and more painful and comes up in the direction of my throat. I have been tested for heart (angiogram) so feel pretty safe it's not that, had several ultra sounds, and chest xray. My bra even hurts to wear and I bought a loose one that is really soft like a T-shirt to see if that would help. It doesn't, when the feelings here it won't go away even with aciphex and maalox. Does this sound like what you are feeling? Would love to find someone that have this feeling, although I wouldn't wish it on anyone that's for sure. The center of my back hurts but I always assumed it was muscle ache from sitting at a desk and computer all day but who knows. Any info greatly appreciated!

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  • hope
    replied
    It's not really a big deal and it's over pretty quick. You might as well have it done correctly. It doesn't sound like this doctor is a specialist in the gastro field.

    Biopsies are more important and standard if anything is seen visually.

    The first step, for me anyway, is to take the pictures to a gastro specialist and have an in-depth discussion about what the pictures show; the need for a second scope with biopsy and the course of action/medication you should be taking.

    I went to six doctors, most specialists before I hit upon the doctor who correctly diagnosed my problem

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  • mickieps
    replied
    Thanks for the input. I agree, I was quite shocked when he told me he didn't do a biopsy, I just assumed he did. I hate the thought of starting over with a new doc, but I have heard of a good one in town, so I will call her. He did give me a copy of the photo he took during the scope and it shows small white spots all over. When I asked him what they were, he just said esophagitis. I can't believe I might have to have another scope because of his incompetence. Oh well, thanks again.

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  • LSAT
    replied
    Get a different GI

    Mickie....I agree with hope...I don't know why a GI would make you go through the EGD without taking biopsies of the esophagus and stomach. Sure, he didn't see anything suspicious which is good, but many problems go unseen by the eye but can be detected under the microscope.

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  • hope
    replied
    I've had several scopes throughout the years and always had biopsies in different areas. How can he make a proper diagnosis without one? There is only so much they can see.

    If it were me, I would go to another doctor for sure.

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  • mickieps
    replied
    Hope, I was just re-reading our earlier correspondence when you mentioned that getting a biopsy during a scope was protocol. Well, my doctor didn't do one. When I asked him about the possibility of candida he said he didn't think so, and told me he didn't take a biopsy. I was kind of surprised, needless to say. Maybe I should consider another doc? All mine told me to do was continue taking the prevacid. It is not making it worse, so I will continue for a while with it - i may even be a little better. From what I've read here, it can take a while to heal.

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  • hope
    replied
    Thanks Olga. I am familiar with the book. I'm in the A group and the selections I can eat are not very appealing! But like you, I do advocate a good healthy diet. I often said that my symptoms are food driven. If I eat correctly, I have little distress. If I eat the wrong foods, I suffer for it.

    Leave a comment:


  • Olga
    replied
    Preventive approach to healing chronic/accute Gastritis

    Dear Hope,
    Just wanted to share my approach to preventing my accute gastritis elevating to Chronic.

    I have been advised to follow-up on the Eat Right for your Diet, by Dr Peter J. A'Adamo and Catherine Whitney. This book has greatly supported me in reducing the aggravation to my gastritis by eliminating the incorrect food types for Blood Group O+. I have found that my whole digestive system has been gradually disintegrating through food allergies. This book has defined the foods that I can consume and the ones that I need to totally remove from my diet. So I shall keep you posted on the outcomes. I hope this maybe of help. I am a big believer in the preventive approach by determining what the root cause is and removing this risk to prevent illness.


    Kind Regards
    Olga




    Went to a Digstive Specialist. I think it's just another name for gastro doctor.

    He listened to me, read my past biopsies and medical history. He was quite pragmatic and said that he has seen this a few times. A patient with on going symptoms of consistent burning with a diagnosis of gastritis (in my case chronic) but on scoping the patient, the visual symptoms and biopsy show a condition that doesn't warrant the kind of symptoms the patient is having. He suspects this is what's been going on; the doctors seeing some gastritis ; the biopsy showing nothing further hence they try different meds or tell me to see a shrink!

    The triggers to him was that certain meds do work but only for a short time and the fact that nobody biopsied my esophagus because it looked okay on a visual.

    He suspects one of two conditions. The first is nerve endings in the esophagus that can't be seen. It's a hyper sensitive condition that requires an anti spasmatic medicine. That's why when I took Librax it worked miracles but only for a few months. Librax doesn't work after awhile meaning you can become immune to it.

    The second condition has such a long name that I was remiss and didn't write it down.

    But he's suspecting a nerve ending issue.

    So, I was scoped last week and he told my husband that he saw mild gastritis and some slight esophagustis. I have an app't with him next week.

    I'll let you know what he says. Let's just hope that he has a name for this and some kind of treatment plan. He told me that yes, there are meds for this and yes, I would need to change my eating habits! My eating habits have changed drastically but there are times that foods will bother me.[/QUOTE]

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  • my3beauties
    replied
    Wow guys!!

    You all are describing me to a tee here!! I just put up a post called "I was in the ER today". Could you guys read this and give me your input please?? Thanks so much!! So glad I read this tonight!

    Nancy

    Leave a comment:


  • hope
    replied
    Hi Mickie

    It would show up on the biopsy. I have several taken with each scope. That's sort of protocol so I'm sure the doctor took tissues from different places to be biopsied when you were scoped. I don't have pain per se', just a lot of discomfort and burning. It's like the worse heartburn you can experience. My stomach and under my breast is hyer sensitive, even to touch.

    If the Prevacid is making you feel worse, I would stop taking it.

    Would be interested in hearing what your doctor comes back with.

    Leave a comment:


  • mickieps
    replied
    Thanks Hope, I see my gastro guy in 13 days, so I guess I'll just keep taking the prevacid until then. If it's still not helping, we'll go from there. I did hear an interesting idea today from a surgeon who is a family friend. He suggested that I might have candida esophagitis - this based on hearing that I had been on several rounds of antibiotics and prednisone before this all started. This is a fungal infection that often occurs after antiobiotic/steroid use, and requires a specific anti-fungal medication. I feel my gastro doc would have spotted this during the scope, but who knows? I will definitely ask him about that - in fact, may try to call him and talk to him before my appointment. the photo he showed me of my esophagus taken during the scope does show scattered white patches. Did you ever consider this for yourself? Symptoms are difficulty swallowing and pain behind the sternum (same as other esophagitis). But it's worth considering. Mickie

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  • hope
    replied
    Mickie, just my two cents. I would stick with the gastro doctor. It seems to me that too many doctors are involved in your heartburn issue. Just the stress of that alone will make your symptoms worse!

    As I said, PPI's, and I tried them all, made me worse. If you indeed do have a sensitivity issue going on, PPI's won't help. They cut the production of acid and you need acid to digest your food. Meaning, if your issue isn't caused by too much acid, the eliminating it will only make your symptoms worse.

    I need DAW or Trish to explain what I'm trying to say here!

    But bottom line is stick with one doctor and take the time to explain to him in detail what's going on. If he listens and doesn't rush you, then follow his recommendations. Your diagnosis was the same as mine.

    If he doesn't listen or is quick to just prescribe something, then find another. In ten years, I've gone to 6 gastro doctors until I finally hit upon this guy. He as well as the specialist I went to had the same conclusion. The specialist I saw a few years ago retired; he was the one that prescribed Librax.

    BTW, Librax is okay to take in terms of side effects. I was prescribed four a day, 1/2 hour before meals and at bedtime. Where I work, the afternoon dose made me sleepy but not to the point I coudln't function. You'll know in a very short time, four days for me, whether it works for you or not.

    Thank you for your kind words. It was my sister in law who developed a brain aneurysm after a successful bone marrow transplant for leukemia. She was a very special person.

    Leave a comment:

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