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anyone ever gone to mayo for treatment?

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  • anyone ever gone to mayo for treatment?

    I'm trying to set up an appointment at Rochester for sometime in the near future. Whom should I be seeing (internalists, surgeons)? What should I be expecting? What's the average wait time for an appointment? Is there anything else I should know?

  • #2
    If you're going for GI issues, see a GI specialist.

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    • #3
      Hi itscml

      I went to Mayo Clinic last year around April. As you probably know Mayo Clinic in Rochester, Minnesota, is ranked No. 1 in Digestive Disorders in U.S. News & World Report. [url]http://health.usnews.com/health/best-hospitals/digestive-disorders-hospital-rankings/[/url]

      What should I be expecting?
      They do a lot of testing in a short amount of time. They did find more problems with me. So I was glad I went. I felt they could have dug a little deeper into my problems. example: I am going for a Bacterial Overgrowth Breath Test this Friday. I think they probably should have done it at Mayo.

      Another problem with Mayo is follow up visits. example, I live in Illinois and getting to Mayo Clinic for a follow up visit is a little hard. So I am (trying) to work with my GI here
      . see trying is in parentheses

      Whom should I be seeing ?

      Thistle is so smart. and right if you are going for gerd/lpr acid reflux problems
      you need to see a gastroenterologist

      What's the average wait time for an appointment?

      It depends from what I understand on the time of the year you go.
      When I made my appointment I knew when I wanted to go so I made it 3 months in advance. I would call Mayo they will gladly talk to you about making an appointment with them. I think I called Mayo 3 times asking questions before i made my appointment.

      If you got any more questions about Mayo i will tell you what I can , I am not an expert, but I have been there.


      Ron

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      • #4
        itscml

        Hey There , long time no see It depends on your problem , whether you need a surgeon or a GI If it's related to your surgery , it might be too soon It's only been 3 months since you had the Hill with Dr Aye ? A lot of them won't see you that soon . I remember you had burning , hope that has disapated for you If it isn't related to surgery, no question , it's a GI you need .

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        • #5
          The short of it is I'm still having problems.

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          • #6
            itscml

            Hi Have you tried talking to Dr Aye ? Since he was your surgeon , that would be the first step .

            If you had no luck with him , probably a GI would be your first step since you are only post 3 months . They can send you to a surgeon while you are there anyway if he thinks you need one . It's hard to know .... don't know the long of it Good luck

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            • #7
              so

              So I went to Mayo and they diagnosed me with esophageal hypersensitivity and spasms. Does anyone know of effective treatment for these? (My pH test was negative, my esophagus isn't inflamed, my surgery is intact, my stomach and lower GI tract are fine, and yet I am often nauseated, struck by chest pain, and awakened in the middle of the night - does my diagnosis jive with my symptoms?)

              Is there any way I can desensitize the esophagus?

              Is there a doctor (internist) in Seattle that might be able to help me?

              Might esophageal dilation help?

              Does anyone know anything about botulinum?

              Surgery sounds barbaric -- a myotomy would be completely inappropriate, wouldn't it?

              Should I get my Hill procedure reversed?

              Are there any drugs that might help?

              Might this get better with time?

              Has anyone else had this (spasms) happen to them? It's very discouraging to still be symptomatic after having had two surgeries.

              What do you guys use to help you sleep through the night (something long-lasting and not habit-forming)?

              Are there any more questions I should be asking?

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              • #8
                Check into food allergy. It's often missed, and it is a plausible mechanism for ppi-refractory heartburn, chest pain, and spasms. Consider asthma--it involves airway 'spasm' of the bronchial tubes. Allergy in the esophagus may do the same. The research on this is still in its early stages. But why not get tested for food sensitivity with a good allergist and see?

                Originally posted by itscml View Post
                So I went to Mayo and they diagnosed me with esophageal hypersensitivity and spasms. Does anyone know of effective treatment for these? (My pH test was negative, my esophagus isn't inflamed, my surgery is intact, my stomach and lower GI tract are fine, and yet I am often nauseated, struck by chest pain, and awakened in the middle of the night - does my diagnosis jive with my symptoms?)

                Is there any way I can desensitize the esophagus?

                Is there a doctor (internist) in Seattle that might be able to help me?

                Might esophageal dilation help?

                Does anyone know anything about botulinum?

                Surgery sounds barbaric -- a myotomy would be completely inappropriate, wouldn't it?

                Should I get my Hill procedure reversed?

                Are there any drugs that might help?

                Might this get better with time?

                Has anyone else had this (spasms) happen to them? It's very discouraging to still be symptomatic after having had two surgeries.

                What do you guys use to help you sleep through the night (something long-lasting and not habit-forming)?

                Are there any more questions I should be asking?

                Comment


                • #9
                  pretty sure it's not either of those since i've already been tested for food allergies (nothing significant) and my asthma is completely under control. anyone else gone through this, especially after surgery?

                  Comment


                  • #10
                    Hi itscml

                    I don’t know about rest of your problems. But I will tell you what I know about sleep.

                    I got a few CD's that use hypnosis to help me get to sleep. Check amazon.com [url]http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=hypnosis+sleep[/url] I will also use Tylenol pm ( but not all the time ) I think Tylenol pm can become habit forming so be careful with it. I don’t not like to take any drugs and like the hypnosis cd’s the best.

                    When I went to mayo I had a class on sleep. The said to get into a routine before you went to bed. Try and do the same things.
                    Try and go to bed at the same time every night.

                    I also find sleeping on my left side is the best for some reaaon

                    They said if you worry about not getting to sleep at night you are setting yourself up for a tuff night. Hope this helps

                    Ron

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